Washington Days - March 5-7, 2025

 

PROUD of our local families advocating at Washington Day 2025 for bleeding disorders.

 

 

 

Washington Days 2025

The National Bleeding Disorders Foundation's Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We look forward to meeting with legislators and staff in person with hundreds of volunteer advocates across the United States to discuss issues important to our community.

The issues for Washington Days 2025 include:

• The Help Ensure Lower Patient (HELP) Copays Act, bipartisan legislation addressing abusive health plan/PBM practices that target high-cost medications and the patients who rely on them.
• Protect access to Medicaid, which provides essential health coverage for at least one third of the bleeding disorders community.
• Education on the federal hemophilia programs, which provide funding for multidisciplinary care at HTCs and for HTC surveillance and prevention activities in addition to outreach and education programs.
• Information related to women and girls with bleeding disorders will be incorporated to each of the three asks.