About & Mission Statement
What is BVHF?
Brandywine Valley Hemophilia Foundation is a totally volunteer organization dedicated to serving the hemophilia community in southeastern Pennsylvania, southern New Jersey, and Delaware. Since 1972 we have worked to provide avenues for personal contact with families, funded research, and helped Centers to provide for the special needs of patients and families. We are committed to the principle that the money generated by our fundraising exclusively services the hemophilia community and does not maintain the bureaucracy of our organization. We encourage the active participation of all people who share our guiding principles.
BVHF Mission Statement
BVHF is committed to providing support to individuals and families who are affected daily by hemophilia and other bleeding disorders. These include:
- Funding research toward better treatment and ultimately advancing a cure
- Funding grants to local hemophilia centers, to advance programs related to patient education and individual family needs
- Sponsoring educational meetings and events to help those touched with bleeding disorders negotiate the ever-changing minefield of insurance company policy and homecare
- Participating in the political process, in a nonpartisan way, to advance the cause of equal access to care and resources for the hemophilia community
- Creating opportunities for concerned individuals to show their support for our community by participating in the fundraising events that fuel our organization
- Addressing the impact of social change by employing technology so families more easily identify the best available patient services
Our goal is to enhance the quality of life and care through our services, events and programs that advocate, educate and support all members of the bleeding disorder community.